NGDF . . . the leading source of help and hope for Graves’ disease!
   
HELPING PATIENTS & FAMILY MEMBERS
The Graves’ Disease Foundation is committed to reaching out to those affected by Graves’ and other thyroid related diseases.  Programs provide patients and caregivers counseling, support, and referrals to medical professionals.  Our goal is to help you understand how the thyroid influences your every day living.  We will support research to find the cause and cure of Graves’ disease.
You can help … join the fight!
 2009 Award Winners 
 
Sharon Barbour
 
Nancy Patterson
 
 Kathleen & Steve Flynn
 Terry J. Smith MD
 Diagnostic HYBRIDS
 David Scholl, PhD
 Adrienne Love
 Laurie Eustis
 Becky & Andy Nicholson
 
 
 
 
 
 
 
 
 
 
 
 

 
 
 
 
 
 
 
 

 
 
  
 
GDF Founder Club Chairs
 
Steve & Kathleen Flynn
  
 

 

 
 

 

 
 
 
 
 
 
 

 

 

volunteer awards & recognition

The Graves’ Disease Foundation concluded its Patient Education Conference with an Awards Banquet to recognize volunteers for their outstanding performance to further the mission of the Foundation.

Nancy Patterson, PhD who started the Graves’ Disease Foundation in 1990 received the “Founder’s Award” for her initiative to help others with Graves’ disease better understand the symptoms and treatment for it. Nancy, after being diagnosed with Graves' assumed it would be something to be treated, take the medicine, and get on with life - unfortunately this is NOT always the case. When it quickly became a struggle, she began to look for information, and for people to talk to that had faced the same concerns. Unfortunately at that time there was no organization with this mission. Undaunted, Nancy took it upon herself to create such an organization. “Through these years, I have been honored to join hands with many dedicated volunteers and physicians who believe that the Foundation can educate, encourage and empower patients and caregivers to improve the quality of their lives,” Nancy said.

Foundation President Peter Filocamo stated, on behalf of the hundreds of thousands of patients and family members you have counseled, we are all motivated by your vision and mission! The Founder’s Award with its story of the Starfish, represents your efforts to make a difference and help one patient at a time.

The GDF awarded its 2009 “Volunteer of the Year” honor to Sharon Barbour from San Jose, California. Sharon or ‘Ski’ was selected for her outstanding dedication to the Foundation as a Facilitator on the Bulletin Board. As a Graves’ patient, Ski has advised thousands of patients who posted questions on the Bulletin Board seeking help and support.

GDF President, Peter Filocamo described Sharon as a shining example of a volunteer who works tirelessly to assist other Graves’ patients who visit the Foundation’s website struggling to understand the impact of Graves’ disease on their life and their family relationships.

Kathleen Bell Flynn and her husband Steve Flynn received the Foundation’s “Making a Difference Award” for their loyal dedication and unwavering commitment. Kathleen and Steve have made outstanding contributions towards our goals and are instrumental in leading us towards a paradigm change for help and hope.

Doctor Terry J. Smith, renowned researcher and Chief Medical & Scientific Officer for the Foundation was given the Foundation’s Leadership Award for developing a goal for funding Graves’ research plus organizing the medical content of the Patient Conferences and securing medical experts to speak at the meetings.

David Scholl, PhD President & CEO of Diagnostic HYBRIDS  was recognized as the the 2009 Conference Presenting Sponsor. In addition, Diagnostic Hybrids has recently launched the ThyretainTM TSI Reporter BioAssay, the first FDA-cleared test that specifically detects thyroid stimulating immunoglobulin in patient serum. Thyretain is to be used as an aid in the differential diagnosis of Graves’ disease. GDF is honored to partner with Diagnostic Hybrids to increase patient, public and professional awareness of the seriousness of Graves’ disease.

Support Group Leaders “Program Excellence Awards” were given to two of the Foundation’s most active Groups in grateful appreciation and recognition of their hard work, devotion, and commitment to offering psychological and emotional support to patients and family members.

Charlotte, North Carolina led by Adrienne Love and Laurie Eustis

Belleville, Illinois led by Becky and Andy Nicholson
 

 
Campaign for a Cure
Graves' Disease
 
Partner with the Graves' Thyroid Disease Foundation in our goal to raise $1 million dollars so gifted scientists & researchers can develop treatments and therapies that will help find the cause and a cure for thyroid disease. You can make a difference by joining the GDF Founders Club.
 
To show our appreciation for your support in becoming a member you will receive a beautiful handcrafted Graves' Disease Signature Bracelet created by Board of Director member, Kathleen Bell Flynn. Click here for more details >>
 
  
 
  
 

Latest information of interest to Graves' thyroid patients, media or personal interest stories are linked below. You can comment on these stories by going to Contact Us  Tab.


<> CELEBRITIES JOIN GRAVES' FIGHT: GDF announces TV Personality, Katie Linendoll and Musician, Antonio Richardson will help to increase public awareness of Graves' disease. These young rising stars have been afflicted by Graves' disease and have decided to make the Graves' Disease Foundation their favorite charity. They believe patients and family members should learn more about coping with this serious illness. They will be telling their story on how it has affected their career. GDF welcomes Katie & Antonio to our team as we hope to find the cure for Graves' disease! A media campaign will begin to increase public awareness - "It's time to take Graves' seriously."  Will you join them? Send us a note!

<> Dr. Don Kikkawa, Ophthalmic Plastic & Reconstructive Surgeon who spoke at the 2008 Graves' Disease Foundation Conference is scheduled to be a guest on "The Doctors" tv show tomorrow, Wednesday Nov. 18.

Doctor Kikkawa will speak on Thyroid Eye Disease. Check your local TV listings for time and channel or visit thedoctorstv.com.

At the San Diego Conference, Dr. Kikkawa spoke about: Modern Approaches to Double Vision in Graves' Opthalmology. He is located in San Diego at the Shiley Eye Center. Here's a brief bio:

Dr. Kikkawa is Professor of Clinical Ophthalmology and Chief of the Division of Ophthalmic Plastic and Reconstructive at the University of California, San Diego. Dr. Kikkawa is a Fellow of the American Academy of Ophthalmology and of the American Society of Ophthalmic Plastic and Reconstructive Surgery (ASOPRS). He is the director of an ASOPRS-sponsored fellowship and served as the UCSD Ophthalmology Residency Program Director from 1993 to 2003. He has been annually elected to Woodward and White’s “Best Doctors in America” since 1997, has given many invited lectures, taught courses both nationally and internationally, and authored numerous articles and book chapters. Along with colleagues at the Shiley Eye Center, he co-founded the UCSD Thyroid Eye Center in 1997.

Dr. Kikkawa may mention the Graves' Disease Foundation and our help to patients.


<> The use of PTU in children has been reported in the news. See the statement issued by the Endocrine Society.

<> Student meets Graves' challenge to see her dreams come back more ... 

Graves' Support Groups allow patients & families to share feelings, & concerns, plus hear expert talks. If you would like to become a Leader or help to organize a group near your home; or maybe just talk to an "Advocate" near you click the Community Tab/ Find a Support Group
 

NEW Boston, MA Support Group will meet on Tuesday, November 17, at Mass General Hospital, 55 Fruit Street, Boston, MA 02114. Speaker Larry Wood, MD, Thyroidologist. For more details or to make reservations contact Graves' Disease Foundation Office at 877.643.3123 or email: Gravesdiseasefd@gmail.com
 
Salt Lake City, Utah Support Group will meet at Intermountain Medical Center 5121 So. Cottonwood St. Murray, UT. For more details or reservations contact Support Group Leader Kaye Lee Day at 801.259.7446 or email: kayeleeday@yahoo.com
 
Denver, Colorado Support Group  For more details or reservations contact Support Group Leader Elaine Martinez: 303.365.6153 or email: lakewoodgraves@yahoo.com for details.
 
Belleville, Illinois Support Group meets at the Memorial Hospital Auditorium 4500 Memorial Drive, Belleville, IL. For more details or reservations contact SG Leaders Becky & Andy Nicholson at their email: belleville_gdf@hotmail.com
 
Columbus, Ohio Support Group meets at The Eye Center, 262 Niel Ave. For more details - contact Support Grp Leader BJ Erickson at her email: lilly139@hotmail.com
 
Charlotte, North Carolina Support Group  meets at the South County Regional Library, 5801 Rea Rd. For details contact SG Leaders Laurie & Adrienne - email: ngdf.charlotte@gmail.com 
 
For Details on other Support Group meetings -   visit the Community Tab/ "Find a Support Group"
 
  
 
 
 
 
 
 

 

 

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Last updated: 11/09/2009