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| The 5 Previous Messages Posted |
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Please read our
disclaimer regarding our policies and privacy statements
 Please
help fund
NGDF through the
Combined Federal
Campaign
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The National Graves' Disease Foundation
is an educational, non-profit organization
established in 1990 and incorporated in the State of Florida.
The purpose of this website is to provide a resource on the world
wide web for those with Graves’ disease (and others interested) to
access NGDF information and materials, our online support bulletin
board, NGDF membership registration, and annual Bridge to Wellness
Conference information and registration.
The information on our site is not a substitute
for medical care. It is not provided to replace the relation between
a patient/visitor and their doctor.
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Dear Graves' Patients,
Welcome to the National Graves' Disease Page! What you will see and read here represents thousands of hours of hard work by some wonderfully dedicated volunteers. The information is checked, and rechecked, so that we may be as accurate as possible.
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A brief note about myself, and the picture that is posted.
I certainly wish I looked like that all the time! An obvious
glamour shot, it was made two years after my first complete eye surgeries. Believe me, I looked just as bad as anyone at one time. What you see is the result of decompression, strabismus, upper and lower lid surgery on both eyes. It took one year to complete the whole series. I still have some double vision, but it is mostly when I am tired, or trying to focus on a camera!
The two doctors that were my endocrinologist and eye surgeon were supportive enough at that time to take the giant step to help begin what is now a decade of the only support group dedicated exclusively to Graves' patients. If this is your first time reading the bulletin board, please make a couple of mental notes. Most of the people who read and post on this board fall into two categories: newly diagnosed, or having a longer-than-anticipated time of adjustment. They are either seeking everything they can find on Graves' and its treatments and expected outcomes, or are seeking answers to the longer-term questions of "if I was treated right, why I don't feel right?" Please do not take everything you read here to heart. Probably ninety percent of the people with Graves' disease are working at jobs they do well, and leading productive lives. We seldom hear from them, and they don't even know about us. So this is my request to you: after you have read the board, and when you are stable, please write us back and let us know that you are one of those doing well. It will give HOPE to those who are still healing.
Sincerely,
Nancy Hord-Patterson, PhD,
Founder, NGDF
To contact one of our NGDF Facilitators (who will attempt to answer
your questions) select
one near you from the list below. Copy and paste the email
address, and then change the "at" to "@" (for example, fred at
mns.net becomes fred@mns.net). We are only
a click away:
| East Coast: |
Jake and Jan George |
jake
at ngdf.org |
| East Coast: |
Bobbi Rosenberger |
bobbi436 at aol.com |
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West or Midwest |
Dianne Wiley | diannengdf at yahoo.com |
| Upper West Coast: |
Ron and Vickie Barela |
bison at kvalley.com |
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Children/school
questions: |
Debby Jass |
debby at jass.org |
Questions on health
issues for children |
Michelle Moraczewski |
michelle.moraczewski at norfolk.gov |
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Founder: |
Nancy Patterson, PhD |
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To receive additional information about the National Graves' Disease Foundation, and
Graves' disease, send a self-addressed 9 by 12" stamped envelope (2.00 postage) to Graves' Disease Foundation at 400 International Drive, Williamsville, NY 14221 or call: Toll Free 1-877-NGDF123 or 1-828-877-5251.
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